Our MA-CEAL Long-COVID Ambassador Training Program employs a train-the-trainer model in which MA-CEAL subject matter experts first train a cohort of “Master trainers,” who in-turn train community ambassadors to facilitate rapid distribution of long COVID knowledge and resources. In year 2, we developed a 5-module curriculum which provides a detailed education in the areas of: 1) Background of COVID-19; 2) Recommendations for personal protection and prevention; 3) COVID-19 Therapeutics; 4) Long COVID; and 5) Accessing Long COVID-related care and supporting loved ones.
MA-CEAL partnered with BMC’s Department of Interpreter Services (the first such partnership in the country) and the BMC Clinical Research Network to develop a curriculum to train medical interpreters to be effective facilitators of research conversations, including the informed consent process. During years 1 and 2, we developed the curriculum, developed a glossary of key research terms in easy-to-understand language as a resource for interpreters and prospective research participants, translated all of materials into Haitian Creole, Spanish, Vietnamese, Portuguese, and Cape Verdean Creole, and began to pliot test the content. The curriculum includes three 2-hour sessions that can be administered in-person or on line: 1) What is a clinical trial and why should we care about them?; 2) Learning the vocabulary and language of clinical trials; and 3) Working as a partner with the research team.
We aim to understand the COVID-19 related experiences of people born outside the United States relating to health management and interactions with the healthcare system. Photovoice projects allow us to capture their experiences through their lens.
Storytelling to Build Medical Trust is a community-based initiative to address mistrust in healthcare, disproportionately affecting BIPOC communities. This is a collaborative effort between Boston Medical Center, Everyday Boston, the B.L.A.C Project, Transformational Prison Project, We Got Us, and EmVision Productions.
Our previous research found inequity in the reimbursement of research participants, and participants are often dissatisfied with the reimbursement mechanisms (e.g., using "ClinCards" rather than cash or gift cards). The reforming reimbursement study aims to understand the community perspective on preferred reimbursement methods to inform our efforts to make a reform on an institutional level.
